Day 1 went something like this..
Woke up at 9:30. Around 10 she wanted to take a bite of something.
Ate 1/2 stage 2 banana baby food (30 cal)
3 ounces of yogurt (90 cal)
2 ounces of whole milk (60 cal)
1 ounce oatmeal (mixed with baby food) (35 cal)
duocal (25 cal)
Total: 240 cal
Lunch:
2 ounce veggie baby food (22 cal)
2 counces cheese mashed pototoes with butter and whole milk (190 cal)
duocal (45 cal)
Total: 257 cal
Dinner:
1 st. 2 baby food-fruit 60 cal
3 ounce yogurt 90 cal
Total: 150 cal
9 pm TUBE FEED:
6 ounces pediasure 180 cal
Daily oral total:
647 cal
Daily total:
827 cal
All in all, a very good start!! Not a huge fan of potatoes. It was a struggle to get those 2 ounces down. I need to find more things she likes to eat!
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GOAL:
1000 Calories/day by mouth
I'll call this the 'getting Bela to eat project'. (this 'project' really started 18 months ago, when Bela was born) Who knows how long it will take from here or what other bumps we will encounter along the way but we're going to try! Bela has had two open heart surgeries, was NG tube fed for 12 long months, had severe GERD (reflux) causing her to throw up several times a day, aspirated food into her lungs, and missed out on crucial development time while she was in the hospital and not eating. Hence, she has eating issues. She had a mickey button placed 5 days after her first birthday and has made leaps and bounds of progress since, but we still have a ways to go..
Up until recently, she did not know that eating food in her mouth was what made the hunger feeling go away, because she had always just got the food placed in her tummy for her! After 6 months of trying to connect hunger, eating, and feeling satisfied, she is ready to be pushed a little.
This is mostly for me to keep track, but who knows... maybe it'll help someone else along their eating journey too.
A journey from tube feeding to oral eating
GOAL:
1000 Calories/day by mouth
Bela vs. Food
I'll call this the 'getting Bela to eat project'. (this 'project' really started 18 months ago, when Bela was born) Who knows how long it will take from here or what other bumps we will encounter along the way but we're going to try! Bela has had two open heart surgeries, was NG tube fed for 12 long months, had severe GERD (reflux) causing her to throw up several times a day, aspirated food into her lungs, and missed out on crucial development time while she was in the hospital and not eating. Hence, she has eating issues. She had a mickey button placed 5 days after her first birthday and has made leaps and bounds of progress since, but we still have a ways to go..
Up until recently, she did not know that eating food in her mouth was what made the hunger feeling go away, because she had always just got the food placed in her tummy for her! After 6 months of trying to connect hunger, eating, and feeling satisfied, she is ready to be pushed a little.
This is mostly for me to keep track, but who knows... maybe it'll help someone else along their eating journey too.
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