Today was one of those days where I wanted to pull my hair out several times today. She just did not want to eat today! Every bite was a struggle.. and i'm too tired to figure out calories! I don't think I want to know today either..
Breakfast
1/4 banana
2 ounce yogurt (stonybrooke farms yogurt with veggie but u can't taste the veggie!)
Lunch
4 oz. butterscotch pudding (liked it!)
2 oz. yogurt
Dinner
2 ounces pears. done.
all day she drank 5 ounces of milk/carnation instant breakfast drink.
9:00 pm tube feed
whole milk and veggie
So that's what she actually ATE today.. Here's a list of what Bela was offered today:
Chicken (two different ways), pasta, spaghettios, peas, peaches, peanut butter, chocolate, goldfish, homemade sweet potatoes mashed, and 2 different baby foods I tried out, with no luck.
I NEED to get her drinking more fluid, or I need to pump some into her during the day, but I know that if I do, she won't even eat as much food as she is eating now! ho hum... not a great eating day. Thank goodness for a new day..
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GOAL:
1000 Calories/day by mouth
I'll call this the 'getting Bela to eat project'. (this 'project' really started 18 months ago, when Bela was born) Who knows how long it will take from here or what other bumps we will encounter along the way but we're going to try! Bela has had two open heart surgeries, was NG tube fed for 12 long months, had severe GERD (reflux) causing her to throw up several times a day, aspirated food into her lungs, and missed out on crucial development time while she was in the hospital and not eating. Hence, she has eating issues. She had a mickey button placed 5 days after her first birthday and has made leaps and bounds of progress since, but we still have a ways to go..
Up until recently, she did not know that eating food in her mouth was what made the hunger feeling go away, because she had always just got the food placed in her tummy for her! After 6 months of trying to connect hunger, eating, and feeling satisfied, she is ready to be pushed a little.
This is mostly for me to keep track, but who knows... maybe it'll help someone else along their eating journey too.
A journey from tube feeding to oral eating
GOAL:
1000 Calories/day by mouth
Bela vs. Food
I'll call this the 'getting Bela to eat project'. (this 'project' really started 18 months ago, when Bela was born) Who knows how long it will take from here or what other bumps we will encounter along the way but we're going to try! Bela has had two open heart surgeries, was NG tube fed for 12 long months, had severe GERD (reflux) causing her to throw up several times a day, aspirated food into her lungs, and missed out on crucial development time while she was in the hospital and not eating. Hence, she has eating issues. She had a mickey button placed 5 days after her first birthday and has made leaps and bounds of progress since, but we still have a ways to go..
Up until recently, she did not know that eating food in her mouth was what made the hunger feeling go away, because she had always just got the food placed in her tummy for her! After 6 months of trying to connect hunger, eating, and feeling satisfied, she is ready to be pushed a little.
This is mostly for me to keep track, but who knows... maybe it'll help someone else along their eating journey too.
This is awesome! Might have to steal your idea.... it's much easier when u have to be accountable to someone (the world :) Addie's been drinking better than eating... about 9-12 oz a day.... maybe try putting some rice cereal in it to make it thicker and more food-like... it worked for Addie. I do one tube feed at naptime too.... just a thought. Keep it up! Looks good :)
ReplyDeleteDoes she seem to do better with instant breakfast than pedisure?
ReplyDeleteThis is cool... keep it up!! Bela gets WAY more volume than Owen does. He won't eat foods that are pureed, so it's harder to get volume. I think I might take a queue from you and try a feeding blog as well.. just to document.
ReplyDeleteKeep working on it. She's doing great! How many toddlers actually eat 1000 cals a day.. seriously.. it's not easy.
You have so much determination and courage and strength, this is amazing, I cannot say that enough. Blessings to you to Bela and your family :)
ReplyDelete